Awareness…very funny.

Here we are again. April. Autism Awareness Month. [Though I will preface with the bigger issue of the COVID-19 virus.] I’ve been getting those wonderful emails from Autism Speaks almost on a daily basis. I used to have some respect for the organization until the curtain was opened and we’re finding out that a huge amount of money is either going to the people that run the place or the scientists who are trying to find that magical cure to autism – which if you’ve been doing your homework…knows that this isn’t something you catch {like a virus}. I did my very best to push the book I wrote about how us workers who have the autism disorder {not disease} are being severely bullied by coworkers and managers on our jobs. On a $.99 book in the USA and UK, I sold a grand total of….1. Yep, I sold one book. I honestly have no idea why I crashed and burned. Heck, I even tried to get the work out to the people on the sub-Reddit of Aspergers and one of the moderators stated I broke the rules and was suspended for 3 days! No joke. I basically told them that ‘you wouldn’t be hearing from me on the book any more because so far I had just one purchase. It’s irritating when I read people’s testimonies about the bully issue at work but, aren’t willing to do anything about it. In the book, I don’t just tell my story, I tell you how the HELL to fight it!’ Any response from Reddit? No. I almost don’t want to read anymore from that sub-Reddit. By the way, back at Christmas time, I actually made the 1st version free. Not too many takers, but I thought it would get things rolling.

I guess I could just ask the question – Do we want the general public to be aware of our disorder or do we care about our own awareness? When I found out I had this in the summer of 2004, I wanted to know everything I could about my condition because I knew I was going to have to make some serious adjustments. I cared. I have a wife, children and I needed to know how to properly interact with them as their husband/father. This year really is a mood point because of the worldwide virus. As we move forward, all I can hope for is if those of us on the spectrum have issues, we need to learn all we can about our liberties and our rights – many of which can be found in books. Sad.

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Autism Awareness One Month Later

I realize that April was Autism Awareness month and right now as I write this…it’s May. The reason I waited is because during the month of April, there are several news stories and lots of media that surround our disorder but, then what? It’s not like I have Asperger’s for a month then it goes away! Don’t get me wrong, I’m very happy that there is an entire month dedicated to the awareness of Autism. I guess I wonder, once the lights have gone down and the press head off to the newer stories to be told…does anyone that doesn’t have this disorder care any more? For us, this will always be a constant battle on the idea of is anyone really aware? I try my best to self advocate for any reason, just to remind people that I’m a little off and I’m not like everyone else. I almost feel like I need to wear a reflective vest that says ‘Caution, I’m autistic.’ The problem is regular people treat other people like they are all the same. Unless the people visibly see that I might be in a wheelchair or missing an appendage, they don’t see the disability in me. Autism Awareness is really, an all year event. This is a battle myself and many others have to deal with every day.